About Us
‘The Lymphoedema Support Network is a registered charity and the UK's national patient support organisation for those living with or affected by lymphoedema.’
The Lymphoedema Support Network (LSN) takes the lead role in educating and supporting people with this condition by providing a high standard of information that can be trusted and promoting supported self-management. Since its inception in 1991, when there was very little information or help available for patients, the LSN has evolved into an independent and influential charity. Having a unique understanding of the patient experience of lymphoedema allows us to work to raise awareness, campaign at a national and local level for equal access to care, provide patient input to research studies and commission and sponsor GP and other health care professional online education.
For nearly 30 years the LSN has been there to provide information and support to those living with or affected by lymphoedema/chronic oedema and although we are now an award-winning charity we are proud still to be run by people with lymphoedema, for people with lymphoedema and we firmly believe that lymphoedema matters.
How can we help?
Please know you are not alone, at least 400,000 men, women and children in the UK live with lymphoedema/chronic oedema. Whether you are newly diagnosed, are concerned that you may be at risk, live with or care for someone with the condition, or are a Health Care Professional interested in lymphoedema, the LSN is here for you.
With appropriate information and the help and support of a lymphoedema practitioner, there is much that patients can do to help themselves in the management and control of their condition. Indeed, patient education, advice and support is now at the forefront of care, ensuring all patients diagnosed with lymphoedema, become an expert in managing their own condition.
Latest News
PIF TICK accreditation
We are both delighted and proud to report that the LSN has been successful in achieving all the necessary steps to be awarded the prestigious PIF TICK quality mark. This replaces the Information Standard (IS) scheme, which has been wound down. When you see the PIF TICK symbol on leaflets, websites, apps or videos, it shows an organisation’s health information has gone through a professional and robust production process. You will notice the new PIF TICK logo appearing on our information soon and hope it will give you continued confidence in our information.
Coronavirus and the LSN
We have been working hard to keep as many of our services running as possible during the COVID-19 crisis. Our telephone lines remain open during usual hours between 9.30am - to 4.30pm; our website remains active, emails continue to be answered, information packs are still being sent out to those who need them and our social media continues. Where possible, we would ask that you pay membership fees online (via the Get Involved section of the website). We are able to process card payments but our phone lines may be busier than usual. If paying by cheque is your only option, we will be able to process it but it may take slightly longer than normal. In addition, we are unable to process merchandise orders so these items have been temporarily removed from our shop.
Rest assured, the LSN will remain open and we are committed to doing our utmost to keep providing you with the information and support you need in relation to your lymphoedema and the current situation.
About us
‘The Lymphoedema Support Network is a registered charity and the UK's national patient support organisation for those living with or affected by lymphoedema.’
The Lymphoedema Support Network (LSN) takes the lead role in educating and supporting people with this condition by providing a high standard of information that can be trusted and promoting supported self-management. Since its inception in 1991, when there was very little information or help available for patients, the LSN has evolved into an independent and influential charity. Having a unique understanding of the patient experience of lymphoedema allows us to work to raise awareness, campaign at a national and local level for equal access to care, provide patient input to research studies and commission and sponsor GP and other health care professional online education.
For nearly 30 years the LSN has been there to provide information and support to those living with or affected by lymphoedema/chronic oedema and although we are now an award-winning charity we are proud still to be run by people with lymphoedema, for people with lymphoedema and we firmly believe that lymphoedema matters.
How can we help?
Please know you are not alone, at least 400,000 men, women and children in the UK live with lymphoedema/chronic oedema. Whether you are newly diagnosed, are concerned that you may be at risk, live with or care for someone with the condition, or are a Health Care Professional interested in Lymphoedema, the LSN is here for you.
With appropriate information and the help and support of a lymphoedema practitioner, there is much that patients can do to help themselves in the management and control of their condition. Indeed, patient education, advice and support is now at the forefront of care, ensuring all patients diagnosed with lymphoedema, become an expert in managing their own condition.
Latest News
PIF TICK accreditation
We are both delighted and proud to report that the LSN has been successful in achieving all the necessary steps to be awarded the prestigious PIF TICK quality mark. This replaces the Information Standard (IS) scheme, which has been wound down. When you see the PIF TICK symbol on leaflets, websites, apps or videos, it shows an organisation’s health information has gone through a professional and robust production process. You will notice the new PIF TICK logo appearing on our information soon and hope it will give you continued confidence in our information.
Coronavirus and the LSN
We have been working hard to keep as many of our services running as possible during the COVID-19 crisis. Our telephone lines remain open during usual hours between 9.30am - to 4.30pm; our website remains active, emails continue to be answered, information packs are still being sent out to those who need them and our social media continues. Where possible, we would ask that you pay membership fees online (via the Get Involved section of the website). We are able to process card payments but our phone lines may be busier than usual. If paying by cheque is your only option, we will be able to process it but it may take slightly longer than normal. In addition, we are unable to process merchandise orders so these items have been temporarily removed from our shop.
Rest assured, the LSN will remain open and we are committed to doing our utmost to keep providing you with the information and support you need in relation to your lymphoedema and the current situation.
Need to speak to us?
We are available Monday to Friday – 09.30 to 16.30. Call our friendly team on 020 7351 4480
How You Can Get Involved
The LSN receives no statutory or health service funding and is reliant on the generosity of our supporters to be able to continue our work.
Call 020 7351 0990 to donate or Contact Us to get involved
Hold An Event
Why not hold a sponsored walk, cake sale, barn dance, you could even jump out of a plane if you are so inclined! And don’t forget to send us a picture so we can build up our photo wall.
Make a donation
You can support our work by making a regular donation to the LSN via JustGiving or Virgin Money Giving or by setting up a standing order. Call our team for further information.
Raise funds while shopping online!
Easyfundraising – provides a FREE service where you can shop with your favourite online stores, and at no extra cost, raise funds for the LSN.