LSN Chair

My background is in business consulting, branding and communications. I have spent many years working with the boards of commercial and charitable organisations, either as an advisor or a board member, in many different sectors and all around the world.
I have secondary lymphoedema in my arm, resulting from breast cancer treatment, which I have lived with and managed for 17 years now.
I am passionately interested in how lymphoedema is handled, in this country and abroad, and in new developments in treatment.
Being an LSN trustee will give me the opportunity to do more.

Honorary Secretary

Having been a regular office volunteer for many years, Linda was persuaded to join the Trustee board and does a great job as our Honorary Secretary, as well as still coming into the office as a volunteer! Linda lives with lymphoedema.

After working in the office as a volunteer, Liz became a Trustee in 2020. With a background in publishing, she brings a wealth of communications experience to the Board, and is now studying a postgraduate qualification in nursing. She also has a personal understanding of primary lymphoedema, having been diagnosed as a teenager.

I am a semi-retired technical writer with over 30 years experience in the hi-tech and financial sectors. I have also acted as Treasurer in a number of professional and public organisations. I am living with secondary lymphoedema as a consequence of treatment for prostate cancer and am looking forward to helping the LSN in anyway I can.

I am truly honoured to join the Lymphoedema Support Network as a volunteer trustee. With over 30 years of experience in cybersecurity, currently serving as an Information Security Director in the finance sector, I bring extensive expertise in governance, strategy, and risk management from global organisations. I am passionate about using these skills to support the LSN’s vital mission and ensure its sustainability and growth. Since moving to the UK in 2012, I have witnessed firsthand the powerful impact of dedicated support networks. I look forward to applying my pragmatic approach and commitment to fostering a well governed organisation that can continue to make a meaningful difference for those living with lymphoedema.

I’m excited to be a trustee of the Lymphoedema Support Network. Having studied Economics at university and later worked in a lymphoedema clinic, I saw how valuable good care and support are in helping people manage the condition with confidence. That experience motivated me to get involved with the LSN, a charity that makes such a difference to those living with lymphoedema. I’m particularly keen to bring a younger perspective to the board and to help more people engage with and benefit from the LSN’s work.

With a background in education and training Brenda joined the team in 2016, she has worked on various projects during her time especially those associated with fund-raising.  Brenda lives with secondary lymphoedema after breast cancer treatment in 2001.

I have secondary lymphoedema in my right leg which was cancer related. My background is that I am a social worker with over 25 years’ experience of working with families who have children with disabilities.
A major part of my work is with families who have autistic children. I joined the LSN so I could get more information about my condition and decided to take the next step and become a Trustee.

Chief Executive

Karen joined the LSN in 2006 after working as a nurse and manager in the NHS and Hospice settings. She is passionate about helping people to live well with lymphoedema and particularly enjoys meeting the membership, challenging service commissioners and educating Health Care Professionals about the condition.

Administrator

Jenny is our longest serving staff member having been with the organisation since 2000. Jenny spends her time managing our volunteer team, managing LSN merchandise and answering the Information and Support Line.